IADR Abstract Archives
Oral survey and care program for Osteogenesis Imperfecta patients
Objectives: Osteogenesis Imperfecta(OI) is a rare genetic disorder that weakens the skeletal system, causing frequent bone fractures. OI patients may also have dental abnormalities like dentinogenesis imperfecta, which leads to discoloration and fragility. To address the oral health of OI patients, we collaborated with dentists and the Taiwan Osteogenesis Imperfecta Association, aiming understand oral conditions, identify risk factors, and promote oral health.
Methods: A questionnaire is conducted. Sociodemographic information, oral habits, chewing ability, oral health-related quality of life, dental conditions, and periodontal conditions are collected. 48 individuals participated, with 21 males and 27 females of different age groups. 52.1% reported good or very good physical health, while 47.9% reported fair or poor health.
Results: In the dental examination, participants had an average of 25.18 remaining natural teeth. Self-perceived oral health revealed that 22.9% felt very good or good, while 77.1% reported fair or poor oral health. Participants who perceived their oral health as good had better chewing ability and quality of life.
Conclusions: This study has some limitations: Firstly, there were relatively few subjects enrolled. Secondly, although the oral health-related quality of life doesn't appear to be very poor, the participants in this study were willing to come forward and undergo oral examinations. A significant portion of the population who are not willing to step forward needs additional support from relevant departments, such as the Ministry of Health and Welfare, in providing subsidies to rare disease associations.
In conclusion, there were no significant differences in chewing ability or quality of life across age groups. However, patients who perceived their health and oral health as good had better oral health-related quality of life and chewing ability. Encouraging social engagement and providing comprehensive healthcare services, including subsidies for dental prostheses, can improve chewing function and enhance the overall health and quality of life for OI patients.
Methods: A questionnaire is conducted. Sociodemographic information, oral habits, chewing ability, oral health-related quality of life, dental conditions, and periodontal conditions are collected. 48 individuals participated, with 21 males and 27 females of different age groups. 52.1% reported good or very good physical health, while 47.9% reported fair or poor health.
Results: In the dental examination, participants had an average of 25.18 remaining natural teeth. Self-perceived oral health revealed that 22.9% felt very good or good, while 77.1% reported fair or poor oral health. Participants who perceived their oral health as good had better chewing ability and quality of life.
Conclusions: This study has some limitations: Firstly, there were relatively few subjects enrolled. Secondly, although the oral health-related quality of life doesn't appear to be very poor, the participants in this study were willing to come forward and undergo oral examinations. A significant portion of the population who are not willing to step forward needs additional support from relevant departments, such as the Ministry of Health and Welfare, in providing subsidies to rare disease associations.
In conclusion, there were no significant differences in chewing ability or quality of life across age groups. However, patients who perceived their health and oral health as good had better oral health-related quality of life and chewing ability. Encouraging social engagement and providing comprehensive healthcare services, including subsidies for dental prostheses, can improve chewing function and enhance the overall health and quality of life for OI patients.