Methods: Cases of vCJD (n= 161) and controls (n~500) with appropriate consent were included in the study. Dental case records were accessed via two methods 1. Direct contact of general dental practitioners
2. Record tracing through Regional Dental estimate boards
Results: Currently, the success rate for retrieval of dental records from cases is 53% (n=87) and for controls is 87% (n=427). The lower success rate for cases is attributable to the period of time from diagnosis of disease to the start of this study. Over 10 years in some cases.
Conclusion: It is challenging to obtain dental treatment records especially since dental records do not follow the patient. A combination of two methods is required to achieve reasonable success rates. Consideration should be given to modernising dental treatment record information that can be used for epidemiological purposes over long periods of time.
Funding Information:
Funders: Department of Health 007/0169