Chronic Oral Mucosal Diseases And Quality Of Life: Qualitative Study

Objective: To explore the experience of daily life of persons with chronic oral mucosal conditions. Methods: Purposive sampling was used to recruit patients from the Oral Medicine Unit patient database of Cork University Dental School and Hospital. An experienced independent facilitator, who was unaware of the issues regarding oral mucosal disease, convened the focus groups and conducted individual interviews in a non clinical setting. Focus groups were mixed with regard to gender, age, chronic oral mucosal condition, time since diagnosis and severity. A total of 24 patients took part, including patients with oral lichen planus, mucous membrane pemphigoid, pemphigus vulgaris, recurrent aphthous stomatitis and orofacial granulomatosis. Results: Analysis of the interviews revealed that patient views could be divided into the following themes – biopsychosocial issues, treatment limitations and side effects, unpredictability of the conditions and the potential for malignant transformation, individual and societal perceptions regarding these conditions and issues for the healthcare professionals. Conclusion: Chronic oral mucosal conditions impact upon the experience of daily life of patients in a variety of areas from physical health and functioning, to concerns about their future. The role of the oral medicine practitioner in the treatment of patients with chronic oral mucosal diseases should extend beyond active management and symptomatic relief to the management of all aspects of these conditions that impact upon their daily lives.